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viviculties.
May 12, 2011

Vivienne made a very dramatic entrance into this world, apparently it wasn’t in her plans to be four days late and she made sure we all knew that she was not happy with the delay.

one week

Vivi has had to return to the hospital every day this week for one test or another.

Today’s being an x-ray.

There’s something about your baby’s tiny body being held down by a stranger on a giant cold table while you watch from behind a leaded wall. And that something is not wonderful.

She has four doctors appointments with three different doctors in the next week, one of them a specialist whose office is almost an hour away from my house.

Something is wrong with her but no one knows quite what it is yet. Pardon me for not going into details, I’m very tender on the topic at the moment.

playing on daddy.

This wasn’t how I pictured things. It’s very exhausting. It’s kind of scary. It’s also very hard because I can’t fix it.

My milk production still hasn’t kicked in, I have a very dedicated doctor and lactation consultant and together we’re doing everything possible to make it work. Even Vivi’s doctor said most women quit by now, especially under these circumstances, and that I am making a heroic effort with everything I’m doing to make breastfeeding possible.

That made me feel better.

But spending half your day in doctor’s offices and hospitals is not relaxing and makes this whole milk making business tricky.

But I’ll keep going.

Because she’s so very worth it.

one week

Related posts:

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  3. Hot: Day 19-Don’t worry, hot doctors? Still hot.
  4. Hot: Day 28-Useless Symptoms
  5. help for broken hearts.

Comments off.

By Sarah @ TM2TS on 05.12.11 4:36 pm | Permalink

I hope you find out what it is soon.

She’s so absolutely precious :)

By bessie.viola on 05.12.11 4:38 pm | Permalink

Sending love and prayers. She is so absolutely beautiful. All will be well.

By Kelly on 05.12.11 4:38 pm | Permalink

I went through something similar with my 2nd, but it was after 7 days of perfect bliss. I don’t know how we managed to get through, something tells me it was the precious little baby we were holding.

Praying for her and you all and sending lots of virtual love.

By Karly on 05.12.11 4:38 pm | Permalink

Oh, Casey, she is absolutely beautiful. I hope that everything turns out to be just fine with your little sweetie. Praying for your family!

By Allison Zapata on 05.12.11 4:38 pm | Permalink

Oh, Casey. I am sorry. Praying they find out whats going on. She is so gorgeous. XOXO

By nicole on 05.12.11 4:39 pm | Permalink

She is just beautiful. I’m so sorry you are having to go through all of this. And yes, you are a hero for continuing to try to give her everything you can, including breastmilk. Good job Mom!

By Pamela on 05.12.11 4:39 pm | Permalink

Ohmygosh … I’m so sorry to hear this. I’ve been there and know what a rollercoaster it is. Please know that you and Vivi and your entire family are in my prayers. Please let me know if I can do anything to help or answer any questions. God bless!

By habanerogal on 05.12.11 4:39 pm | Permalink

She is so beautiful and kudos for sticking it out with the breastfeeding. Thinking positive thoughts for you all.

By amber on 05.12.11 4:40 pm | Permalink

She is beautiful. I am so sorry that there is something wrong. We thought my son Louis had craniosynostosis (he didn’t) and it pushed me over the edge into major depression. I am still working on getting it under control. I hope every thing is ok and will be thinking about you

By Sherry Carr-Smith on 05.12.11 4:40 pm | Permalink

She is so worth it and so are you. Sending lots of healthy vibes for Vivi and milk vibes for you!

By mrshiggison on 05.12.11 4:41 pm | Permalink

Strength & love for your little miracle girl.

By Jenn on 05.12.11 4:41 pm | Permalink

ohh casey, she is so beautiful! I know you guys get some answers soon!

By Jenni Williams on 05.12.11 4:41 pm | Permalink

I pray they find out what is wrong soon, and that it is nothing serious. You are giving it a heroic effort to nurse. You are inspiring. She is just too precious.

By Amy @ Binkytowne on 05.12.11 4:42 pm | Permalink

Good gracious she’s beautiful. I just have to add my two cents here and say if the breastfeeding doesn’t go as planned DO NOT FOR ONE SECOND feel badly about it or torture yourself to get it where you think it should be. When you are in the thick of it, it’s easy to forget that you just need to love your baby. That’s all that matters.

By Rachel on 05.12.11 4:42 pm | Permalink

The emotions are so raw. I know those feeling well. Prayers are with you, and I hope you find answers soon. And as a wise old woman who often pops into my head during times such as those says: “This too shall pass.”

By cindy w on 05.12.11 4:43 pm | Permalink

Oof. Don’t really know what to say except that it sounds horribly stressful and upsetting, and I’m so sorry you’re going through it. Hoping this is something that will pass quickly. xoxo

By Julie on 05.12.11 4:44 pm | Permalink

She is absolutely beautiful. I’m sorry that y’all are struggling, and I hope that it’s all settled soon. We’ll all be waiting with open (virtual) arms when you’re ready to talk.

By Chibi Jeebs on 05.12.11 4:46 pm | Permalink

Oh, Casey. Sending many prayers and much love your way – holding your hand from afar.
xoxo

By Issa on 05.12.11 4:46 pm | Permalink

Tons of hugs Casey.

By Jaime on 05.12.11 4:46 pm | Permalink

So sorry that there’s something wrong and you don’t have answers yet. Kudos to you for being a great mom, though. She is absolutely adorable.

By Diana on 05.12.11 4:47 pm | Permalink

I can completely relate to where you are at right. That is how things were with our second daughter, only we were already dealing with heavy medical issues with our older daughter. Praying for strength for all of your family.

By Jenny from Mommin' It Up on 05.12.11 4:47 pm | Permalink

I don’t know HOW you get such amazing pictures. That 2nd picture is unbelievably precious. I really am struggling to find words to describe it, so I won’t try any more.
Great job on the bfing. I am an ardent breastfeeder and supporter of it but at some point if it ain’t happening, and you need one less thing making you crazy, IT IS OK. I am praying for you & Cody & the girls as you all go through this.
Whatever it is, she is perfect. She is just how God made her to be.

By Tara on 05.12.11 4:50 pm | Permalink

I’m so sorry that you and your family are going through this. My step-daughter’s daughter (I’m WAY to young to be a grandma) was born at the end of January. She spent a month at Community North, went home for 4 days, then went to spend the next month at Riley. It’s been a grueling few months for everyone, but the baby is a fighter! My heart and prayers go out to you!

By Nichole on 05.12.11 4:50 pm | Permalink

Sending you more love + prayers.

By mommabird2345 on 05.12.11 4:51 pm | Permalink

She is too adorable. You, Vivi, and your family are in my prayers.

By Kathy K on 05.12.11 4:52 pm | Permalink

She is beautiful and precious. I hope that you will get answers that give you and Cody peace soon. In the mean time just love her and do what you can for the breastfeeding. My thoughts and prayers are with you and your adorable family.

By Amber on 05.12.11 4:52 pm | Permalink

Congratulations on your new addition – she’s perfect! I hate to hear that you guys are off to a rough start and will definitely be praying that everything works out soon.

I’m a new follower, btw. Love your blog!

By Krista on 05.12.11 4:52 pm | Permalink

She’s beautiful. You’ll get through this and figure it out. Many thoughts and prayers to all of you.

By crookedeyebrow on 05.12.11 4:53 pm | Permalink

I am sending lots of love, milk vibes and prayers for answers you all.

By Marie Green on 05.12.11 4:55 pm | Permalink

Oh, darling, that really sucks. I’m sorry your baby (and you) have to go through all of this right now. Hang in there. And I think your efforts to nurse her are heroic too. Sending you healthy, milky vibes…

By abbeyviolet on 05.12.11 4:56 pm | Permalink

My sister welcomed a her son with that sort of situation and was so hard, but with a good outcome. Prayers, hugs and love to you and yours.
Ps. She is gorgeous and go you for the commitment to it!

By Megan {Velveteen Mind} on 05.12.11 4:56 pm | Permalink

Vivi is gorgeous and magic and so is her mom. As with all things magical, there’s always a bit where it’s sort of scary… and then you get to the oooh’s and aaaaahhhh’s part and see the awesome. Plus, there is usually glitter involved, which Addie will like. (love you and thinking of you)

By Overflowing Brain (Katie) on 05.12.11 4:56 pm | Permalink

Casey, if there is literally any way I can help (or my husband), do not hesitate to let me know. Love to you guys, always.

By Shannon on 05.12.11 4:56 pm | Permalink

I’m sure everything will be just fine with your precious little miracle… hang in there and keep squeezin’ those boobs till you get something!!

When you feel up to it, it may be beneficial to describe a little of what is going on… I know you’ve probably done a ton of googling, but sometimes the Mommies that read your blog are the best Google of all! We may be able to help :) Just a thought…

stay strong!!

By melissa on 05.12.11 4:57 pm | Permalink

Oh my isn’t she beautiful!!!! Thoughts & prayers going out that everything works out just fine.

By Angie on 05.12.11 4:58 pm | Permalink

Just know I am praying for you and that beautiful baby.

By Elizabeth on 05.12.11 5:03 pm | Permalink

I have never commented before but I wanted to express my compassion for what is going on in your life.

New babies and new baby emotions are HARD. Allow yourself time, space and peace to deal with a new baby on top of this stuff. Be patient and loving with yourself.

I had to watch my 3 day old receive an ultrasound. It sucked. You’re right about that.

Vivi is damn stickin cute. When it gets rough, curl up with her and smell her head.

I would never tell you what to do about breastfeeding. I know alot of people who have strong feelings about it. I breastfeed my first forever, my second about half that and my third not at all. They are all awesome kids. Just saying…don’t beat yourself up over it.

By Jen on 05.12.11 5:03 pm | Permalink

Sending lots of virtual hugs and prayers to you and “figure this out already” juju to your doctors. You’re doing a great job, Casey. You are doing a GREAT job. Wishing the best for you.

By Elizabeth Kaylene on 05.12.11 5:06 pm | Permalink

Oh Casey, I am sending my love and hugs to you all. Hang in there. Everything will be okay.

By Whitney on 05.12.11 5:07 pm | Permalink

I hope everything’s okay with little miss Vivi, but don’t worry yourself silly right now. Trust in God, breathe, and enjoy her sweet little face. Prayers are with you and your family!

By Kari on 05.12.11 5:10 pm | Permalink

She is beautiful. You did an amazing job. You were sent this baby because you are an amazing mommy. You can handle whatever is “wrong”. I will send lots of good thoughts and prayers your way.
If you have any questions about the med tests, etc — send me an email and if I don’t know the answer I can find out for you.
Sending lots of hugs. And remember you are an AMAZING mommy. That’s why you were blessed with an amazing little girls.

Hugs,
K

By Mrs. Commoner on 05.12.11 5:14 pm | Permalink

I’m so sorry the cutie is sick. That is hard to deal with when all you want is to sleep and bond. Also, as I know all too well, the milk thing is very frustrating. Keep doing what you’re doing, bit don’t kill yourself doing it. My body didn’t cooperate with either of my boys, and I’m still depressed over it.

My thoughts are with you.

By Drea on 05.12.11 5:14 pm | Permalink

so sorry to hear vivi is having to have so many test done… im sure its so so scary… and abt milk production :( thats so difficult. I had that same issue too and my son was starving the 1st two weeks of his life.. screamed for hours because of it :( – I think Ive mentioned it on here before tho so I wont say any more, but lets just say letting go of nursing him was so extremely hard… emotional and depressing all at the same time… but im so thankful for the peace that came once he got a full feeding.. and no longer screamed with hunger. Bottle or breast… whats most important is that our babies are loved, nurtured and cared for.

By Jenny on 05.12.11 5:18 pm | Permalink

She is tiny and precious! I hope that everything turns out okay.

As far as nursing goes have you tried fenugreek. It is an herbal supplement that helps with lactation. It works, but makes you smell like maple syrup…I used it and it worked for me. Just a thought. You can get it at whole foods.

By VDog on 05.12.11 5:21 pm | Permalink

Oh honey. Right there with you in spirit. Let me know of there’s anything I can do.

She is absolutely perfect.

Xoxo

By thepsychobabble on 05.12.11 5:23 pm | Permalink

Sending happy thoughts

By jen on 05.12.11 5:23 pm | Permalink

she IS perfect. and you’ll figure out all that other stuff soon enough. thinking of you as you venture through these unknowns.
xoxo.

By Amber on 05.12.11 5:27 pm | Permalink

Sending prayers and love. She is gorgeous!

By anymommy on 05.12.11 5:30 pm | Permalink

Thinking of you and that gorgeous little girl.

By JourneyBeyondSurvival on 05.12.11 5:31 pm | Permalink

Such a wonderful photographer you are!

My Chickadee has issues. They didn’t know what it was for a while. The things that made it livable for me were celebrating her tiny victories, including her in our life 100% and remaining as plugged in as I could to ‘real’ life.

You’ll find your way. Rileys is amazing. So is what used to be Clarian North. Pediatric Specialists are an awesome bunch, I’ll tell you that. Even if they don’t have an answer, suck up the connection.

Because they’ll understand like nobody else.

xo

By mandie on 05.12.11 5:32 pm | Permalink

she is so, so beautiful girl. praying for you guys…

By molly on 05.12.11 5:33 pm | Permalink

I love you. And Vivi and Addie and Cody. Praying my head off.

By Rebecca (Ramblings by Reba) on 05.12.11 5:34 pm | Permalink

Thank you for letting us pray.

By Miss Britt on 05.12.11 5:35 pm | Permalink

I hope you get answers soon, and that those answers come with solutions.

By JourneyBeyondSurvival on 05.12.11 5:38 pm | Permalink

Oh, and be kind to yourself.

Breastfeeding can be a stress of it’s own. You are truly truly heroic to try so hard.

It turned out badly for me and it didn’t need to. Congrats on finding support, and I just want to validate what you’re doing.

IT’S AMAZING!

By Kim on 05.12.11 5:39 pm | Permalink

Oh Casey, I am so very sorry. There is nothing worse than knowing your child is sick and there being nothing you can do to fix it right.now.
I will keep you all in my prayers and pray that the Lord will help her doctors to know how best to help your sweet girl.
Lots of love to you Mama.

By Shauna on 05.12.11 5:46 pm | Permalink

Hugs for you and your family. I am praying you have answers soon. xoxo

By Erin on 05.12.11 5:48 pm | Permalink

Oh, she is so beyond worth it. Passing strength you and your husband’s way.

By Jennifer on 05.12.11 5:49 pm | Permalink

Hello insult, meet injury! After everything else, this is just TOO MUCH. Sometimes everything to do with little babies is terrifying… can’t wait to hear that she (and you) will be just fine.

By alex on 05.12.11 5:49 pm | Permalink

she looks perfect to me. so sorry to hear about the health worries and testing – it makes my heart hurt for you and your family. hope you get some answers soon.

By Joules on 05.12.11 5:54 pm | Permalink

I wish you both, actually you all, health, abundant milk production and abundant snuggle time with that little adoragirl.

By Amanda on 05.12.11 5:57 pm | Permalink

Oh luvie. She is so absolutely gorg, I am in love! Prayers for you all! {{hugs}}

By Alison on 05.12.11 5:59 pm | Permalink

Prayers and hugs sent to you all! I hope they figure out what the problem is and she is better soon! She is too too sweet!

By Shelley on 05.12.11 6:01 pm | Permalink

Your little girl is very lucky that she was born into such love. The unknown is scary. I hope you find answers fast and that your “boobie buffet” is feeding Vivi very soon:)

I’ll be praying for all the good things you,Cody,Addie and Vivi deserve.

xo

By Amy on 05.12.11 6:02 pm | Permalink

Big love and prayers to you and yours.

By steph on 05.12.11 6:10 pm | Permalink

oh sweet vivi! she’s beautiful. i pray that they’re able to figure out what is going on with her soon, and i pray that you, cody, addie, and vivi are given guidance and peace to deal with whatever comes your way.

big hugs to you, casey.

By Brandi on 05.12.11 6:18 pm | Permalink

Sending tons of love and prayers your way, Casey.

By Colleen on 05.12.11 6:40 pm | Permalink

I started to write a long winded comment and the decided to e-mail instead.

Love you.

By Alicia on 05.12.11 6:56 pm | Permalink

Thinking of you and your beautiful family. Just remember everything happens for a reason and God never hands out more than you can handle. You are a strong woman and are an inspiration to all of us!

By J from Ireland on 05.12.11 6:58 pm | Permalink

Oh dear, this is a tough time. You are in my thoughts and prayers. That Vivi girl,s pictures just melt my heart, she is so adorable, I had to show my husband her cuteness.

By Ali on 05.12.11 6:59 pm | Permalink

Oh Casey, I’m so sorry that you are going through this. I know exactly what you are going through with the x-ray thing, but could not fathom not knowing what is wrong.

When Tanner had his issues, you and all of your internet friends helped me SO much, you can’t even imagine. I am sure that there are so many thoughts and prayers coming your way just like I could feel there were for me. And I didn’t even know so many of the people they were coming from!

If there is anything I can do… someone to cry with, someone to scream at (cuz I know you want to), or just someone to talk to that has been through something similar with hospitals and nurses with such a tiny baby, please hit me up.

I am praying and sending good thoughts towards you, Vivi and your cute little family!

By GACgirl on 05.12.11 7:17 pm | Permalink

Praying for you guys. After having my baby girl in the SCU (special care unit) after she was born it is always scary.

Vivi has a great family around so here is to hoping they find the issue fast!

By Jess on 05.12.11 7:43 pm | Permalink

Oh GOD, I understand.

When my 3rd (now 14mos) was 5 days old we went to the ER. Full septic workup, EKG, MRI, CT Scan, Xrays, spinal tap. All of this on my tiny baby.

Then a 24 hour video EEG with electrodes glued on her head. She looked like a crash test victim.

A week in the hospital and nine different specialists, because I KNEW something was wrong with her. We left with a diagnosis of benign infant seizures, and a script for anti seizure meds. I’ve so been there. It’s beyond anything that a postpartum mom can describe to anyone. But I get it, and if you EVER need to just dump on someone who understands, feel free to email me. Livie is 14 months now, and while developmentally delayed, she’s precious beyond life itself.

By Ohmommy on 05.12.11 7:45 pm | Permalink

Much love.

By Karissa on 05.12.11 7:46 pm | Permalink

Sending prayers for your family Casey, she’s a precious little girl!

By Redneck Mommy on 05.12.11 7:47 pm | Permalink

I know what it is like to give birth to a child who had unexpected health issues.

Which means, my shoulder is yours if you need someone to talk to who understands all the joy and the pain you may be feeling.

Love you kid.

By Ohh, Betsy! on 05.12.11 7:51 pm | Permalink

Vivi is so, so beautiful. I love her. She’s so lucky to have you guys. You’re a champ for keeping up the hard work. I hope there are answers soon.

By mommymae on 05.12.11 7:53 pm | Permalink

thinking good thoughts for you all.

By Molly on 05.12.11 8:09 pm | Permalink

hugs and love to you Case!!Oh Casey, this new baby girl is so sweet and precious and I know she will bring you lots of joy, and one day you’ll tease her about how stressful her first week on earth was!!

Here’s to figuring it out fast, and may it be nothing ore than a memory in the distant future my friend.

By alimartell on 05.12.11 8:19 pm | Permalink

Thinking of you. Sending you lots of Xs and Os.

Love you.

By Barb @ getupandplay on 05.12.11 8:22 pm | Permalink

Oh, my heart is breaking for you- this must be so hard. I’m so sorry you are going through this. I pray you will find the answers you’re looking for soon.

By Ashlee on 05.12.11 8:27 pm | Permalink

I’m so sorry you guys have to go through all of this. Miss Vivi is so beautiful!

By IrrationalDad on 05.12.11 8:36 pm | Permalink

I can’t fathom what you’re going through, but I wish you the best and will keep you and your family in my thoughts.

By Daisy on 05.12.11 8:45 pm | Permalink

Prayers for an easy diagnosis with nothing scary, the nursing difficulties to end and you to only have to worry about what you want for dinner. Hugs to the whole Moosh clan.

By leel on 05.12.11 8:52 pm | Permalink

she is so sweet! this must be really hard and emotional. thinking of you lots and lots and lots. sending vibes of wellness and peace. xo

By Kate on 05.12.11 8:52 pm | Permalink

Sending hugs and prayers to you & Miss Vivi!

By Ronda on 05.12.11 8:59 pm | Permalink

I’ve spent parts of this last week at Riley hospital, so I know how your blood runs cold and your heart simultaneously drops to your stomach and leaps up out of your throat. I’ll keep your sweet family in my prayers.

By Untypically Jia on 05.12.11 9:19 pm | Permalink

She’s such a little gorgeous angel. You’ll all be in my prayers, I hope the doctors find out all the details and SOON. (And that the news is positive.)

By Holly on 05.12.11 9:28 pm | Permalink

Breastfeeding is great and all – but there is only so much stress one person can handle. Thinking of you and hoping you have a good answer soon.

By Elizabeth on 05.12.11 9:35 pm | Permalink

Big big hugs. Everything will work itself out. She will be fine.

Thinking about you girls. And by that I mean not only you and Viv, but also your boobs. But not in a creepy way. Promise.

By Erin on 05.12.11 9:37 pm | Permalink

Love and prayers. I know how scary it is to have something wrong with your baby and not know what it is. From here, she looks absolutely perfect in every way.

By Elaine on 05.12.11 9:44 pm | Permalink

I hope you get some answers very soon. I’ll say a prayer for you all and sweet baby Vivi.

By AnnD on 05.12.11 9:47 pm | Permalink

I am so very sorry to hear this! I feel like a prat because of my comment on your breastfeeding post…I was under the impression that if cabbage leaves were involved, than you had an oversupply! :O/

My daughter was diagnosed with Autoimmune Neutropenia at 15 months. I know how you are feeling and just know we are all here for you and thinking good thought for Vivi and saying prayers for her! Keep us updated!

By Lisa on 05.12.11 10:14 pm | Permalink

Much love to you as you go down this road. I hope that they are able to find out what is wrong quickly and that you get good solutions for dealing with whatever it is.

That face is to die for, she is so gorgeous.

By amy turn sharp on 05.12.11 10:19 pm | Permalink

lots of prayers and love coming yr way sweetie. She is gorgeous and I can’t wait to meet her someday soon. I love you sweet thing. xo

By Elizabeth on 05.12.11 10:28 pm | Permalink

Many hugs and prayers coming to you, the gorgeous Vivi, and the whole family. You are a remarkable mother, and I hope you get answers and solutions soon.

By Beth on 05.12.11 10:29 pm | Permalink

She’s simply precious. Hugs, love & prayers being sent your way…

By Liss on 05.12.11 10:39 pm | Permalink

YAY and HOORAY! she is beautiful. i wish you peace and lots of good vibes coming your way. i hope the doctors figure things out soon. *hugs*

By Candace on 05.12.11 10:40 pm | Permalink

Take care of yourself, you sweet thing. Breastfeeding difficulties plus baby health issues can take it all out of you. Praying and hoping the best for you and Miss Vivi.

Candace Reply:
May 12th, 2011 at 10:51 pm

@Candace, P.S. You are already an amazing, heroic mother….regardless of how Vivi gets fed. Just wanted to make sure someone tells you that.

By Sarah on 05.12.11 10:46 pm | Permalink

Sending you love and good thoughts and hope for answers soon. She’s beautiful, Casey. So so beautiful.

By Natalie on 05.12.11 10:57 pm | Permalink

I’m sorry things are starting out so roughly, I hope the docs can get things figured out quickly. And I hope your milk kicks in! She’s absolutely precious!

By Mommynamedapril on 05.12.11 11:00 pm | Permalink

I’m so sorry you’re going through this. My heart is with you.

By Shannon on 05.12.11 11:03 pm | Permalink

Prayers for you and your family. Hang in there – you’re a great mama!

By molly on 05.12.11 11:03 pm | Permalink

my heart is breaking that you’re having trouble with your sweet girl. I hope it’s nothing too serious. I’ll say a big prayer tonight that vivi stays well!

You, my dear, are a rockstar mama!

By Miss Grace on 05.12.11 11:09 pm | Permalink

I’m so sorry honey. Wishing your family well.

By Jenny on 05.12.11 11:21 pm | Permalink

Best wishes. I hope you find an answer and successful treatment soon. I love that smiley picture!

By Anna on 05.12.11 11:24 pm | Permalink

Sending prayers and hugs! Vivi is beautiful.

By Amanda on 05.12.11 11:47 pm | Permalink

Sending love. I was a mystery to the doctors after I was born 2 weeks late (twins are supposed to be 38 wks and we went the full 40) and still wasn’t “fully cooked” while my twin was. I hope this turns out to just be a small speed bump in Vivienne’s life like it was for me. Hang in there! Stay positive, xoxo

By elliespen on 05.13.11 1:17 am | Permalink

Sending thoughts and prayers your way. She is absolutely gorgeous!

By Janice (5 Minutes for Mom) on 05.13.11 1:30 am | Permalink

HUGS!!!!!!!!!!!

It was agony waiting and worrying when Jackson was born and the doctor’s told us he might have kidney disease. I was a mess for those first weeks.
And when Susan’s first, Julia, was born, she had three different specialists and spent her first few months going back and forth into the city to go to Children’s Hospital.
But now, they are both healthy — sure one has odd shaped and larger than usual kidneys and the other has a hole in her heart — but they are running around healthy. (Well – if you don’t count all of Jackson’s other diagnosis!)

SO, I am hoping and praying it will also be the case with Vivi — that these terribly painful early days will fade into history as she grows up healthy in her own Vivi-way! :)

By Janice (5 Minutes for Mom) on 05.13.11 1:33 am | Permalink

PS — Sue has to take meds to get enough milk. Perhaps you are already doing that, but just in case you were worried about doing it. I know Sue felt concerned taking medication for it. But it totally worked!

By Rachael on 05.13.11 1:47 am | Permalink

I really hope you’re all okay. (Hugs)

By Krista on 05.13.11 2:00 am | Permalink

So sorry Casey. I pray that you get some answers soon and they are good ones. Noah had to have his surgery last week, the one I’ve been dreading since he was born, but it turned out alright. Thankfully.
We wish that it could be us instead of them.

By Michelle on 05.13.11 5:32 am | Permalink

Praying.

By Rachel on 05.13.11 7:41 am | Permalink

Whatever is going on with your precious baby I hope it is nothing serious and the doctors figure it out very soon! I will definitely pray for all of that and for MILK lots and lots of milk. You are doing amazingly well Casey especially under so much stress. You just keep on keeping on girl! You baby is so beautiful like her Mama and bis sis! Little Vivi has a large fan base already so many well wishers and people praying for her and your whole family!!

By Joanna on 05.13.11 7:43 am | Permalink

Keep up the breastfeeding as long as you can- your future self will thank you. Don’t forget you’re loved. You have a beautiful daughter (two of them, in fact!).

By Erin on 05.13.11 7:56 am | Permalink

I am so sorry you have to go through this after all that have already gone through. When my son was born, they detected a heart defect and he spent time seeing many specialist and being strapped down to a board for x-rays and it was terrifying and heartbreaking. He did outgrow it, thank heavens and is a healthy teenager now. I will pray for you and your family, of course.

By Shannon on 05.13.11 8:05 am | Permalink

Being a mom is a heroic effort! Make sure you take care of yourself first – keep a close eye on the post-partum depression. We are all praying for you and your little beauty.

By Arthur on 05.13.11 8:21 am | Permalink

Really very sorry to hear this. Obviously lots of thoughts and prayers going out to you and your family. Hope you find answers soon.

By Sunshine on 05.13.11 8:27 am | Permalink

You are a fantastic mother. Praying hard. xo

By Kristin on 05.13.11 8:28 am | Permalink

I’m so sorry Casey. I hope that you can get answers soon. xoxo

By Senora H-B on 05.13.11 8:35 am | Permalink

Prayers for you and your sweet family.

By Jennie on 05.13.11 9:15 am | Permalink

Thinking of you and your sweet family and wanted you to know there are many prayers coming your way!!! She is absolutely beautiful and makes my heart melt looking at her pictures…I can just imagine how you feel looking at her in person!!

By burghbaby on 05.13.11 9:28 am | Permalink

You made it through law school. You made it through living in a roach motel with a puking kid. You made it through puking your own guts out until your face exploded. You’ll make it through this as well.

By angie on 05.13.11 9:49 am | Permalink

She is absolutely beautiful! You take amazing pictures.
I am sorry you have a health issue to deal with with your perfect little baby. My third child had issues and I understand how hard that is. I will be sending good thoughts your way and hoping everything turns out fine. Try to stay positive until you know what is going on. Love and strength is headed your way.

By Mary on 05.13.11 10:06 am | Permalink

All of my thoughts, support, and love out to you guys right now. If you’re downtown and want some company while you wait one day, let me know and I’ll find my way there. :)
xoxo.

By Amy on 05.13.11 10:13 am | Permalink

Praying for your sweet girl…

By Nellie on 05.13.11 10:14 am | Permalink

Sending lots and lots of love and prayers that everything turns out Vivitastic in every way!!!

She is precious, she is beautiful, she is infinitely loved….by all!!!

By Gretchen on 05.13.11 10:25 am | Permalink

Great big pink puffy hearts (the floating, glittery kind) to you and your family. You are in my thoughts and prayers.

By Skye on 05.13.11 10:30 am | Permalink

Sending you lots of love and prayers to you and your sweet family! She’s such a little doll!!! XOXOXOXO

By tifRN on 05.13.11 10:34 am | Permalink

oh, casey, I’m sorry. I hope the specialists find something out, so theres an answer, but nothing awful or life changing. if you have any questions you can email me…I’m a peds nurse and have spent my whole career in peds and picu. god bless!

By lissa on 05.13.11 11:19 am | Permalink

She is precious. I hope you get answers.

On the breastfeeding… keep trying. Our neo doc told me that if I wasn’t successful by the time the twins were out of the NICU, we probably never would be. I kept pumping and pumping, and guess what? We made it 10 months.

By Penbleth on 05.13.11 11:33 am | Permalink

Love and best wishes and prayers for Vivienne, you and your whole family.

Lynn

By Jenn Bo on 05.13.11 11:52 am | Permalink

Casey – You and Vivi will be in my thoughts. I am certain the stress of the unknown is not helping the milk production process and your heroic efforts MUST pay off in the end. Most important, what a beautiful baby!

By mel on 05.13.11 12:00 pm | Permalink

thinking of you and sweet little Vivi. xoxo

By Sara on 05.13.11 12:57 pm | Permalink

Sending you lots of prayers and hugs.

By Emily on 05.13.11 1:02 pm | Permalink

I’ll be thinking good thoughts for you. I hope everything is okay.

By Colleen on 05.13.11 1:08 pm | Permalink

Hugs, thoughts, prayers coming to you and your sweet baby

By Susan A on 05.13.11 1:21 pm | Permalink

Vivi looks soo beautiful. Your pictures are WONDERFUL. My thoughts and prayers are with you. It will be ok. ((((HUGS))))

By Kassandra on 05.13.11 1:35 pm | Permalink

Praying for your family and Vivi. Praying everything will be ok.

By Heather on 05.13.11 2:00 pm | Permalink

Praying for you and your family. Stay strong. God is in control.

I can do All things through Christ who strengthens me. Phil. 4:13

By Amy in StL on 05.13.11 2:02 pm | Permalink

Wow, I’ve had friends that have newborns that have issues and it’s so hard until you know what it is. All the guessing and tesging – ugh! But they will figure it out and then you’ll have a course of action and I know you’re strong enough to stick it out. It never ceases to amaze me how strong moms can be.

By Angie [A Whole Lot of Nothing] on 05.13.11 2:17 pm | Permalink

Sending you strength to get through to find out exactly what it is to help Vivi.

By Della on 05.13.11 3:16 pm | Permalink

I’m sorry :( . They thought my daughter might have had hip dysplasia, and I know what you mean about the holding down — on a cold hard table, too! — for the x-rays.

She’s perfectly perfect, even if they discover something is wrong. And on top of it she’s gorgeous. Sending love.

By T on 05.13.11 3:40 pm | Permalink

i was never able to breastfeed my first…but i did pump for him for 12 months…then i successfully bf’d the next two for 9 months and 13 months…so do what you feel you need to do for her and take good care of yourself…grace, peace, and strength to you…

By Trisha Vargas on 05.13.11 4:07 pm | Permalink

Sending prayers your way Casey! Hoping you get answers soon and that Vivi stays well!

By Lesalina on 05.13.11 4:44 pm | Permalink

I’ve been so out of the loop, I had no idea. If you need company on a long ride to the doc or just someone to take Addie to paint things pink, let me know.

We are all rooting for you both. x

By punkinmama on 05.13.11 4:51 pm | Permalink

Oh Casey, I’m so sorry that there are questions that don’t have answers right now. I know how frustrating that can be for the mama who just wants to fix it. Praying that everything will be okay with Vivi.

And way to go with trying – I know it’s so important to you, so I hope the milk starts flowing freely (though not *too* freely) soon!

By Brenda on 05.13.11 5:11 pm | Permalink

Kids are complicated.
Mine was early instead of late, but she wasn’t happy about it either. 7 months and lots of specialists later, we’re finally learning that she just wants to do things her own way, even if they’re not the way typical kids do them. She’s just special like that.

Wishing you and your precious vivi (and the rest of your family!) the very best.

By AmazingGreis on 05.13.11 7:28 pm | Permalink

Thinking about you and sweet Miss Vivi!!! I’m always around if you need ANYTHING! XOXO

By Rachel - A Southern Fairytale on 05.13.11 8:12 pm | Permalink

love you, friend.
Massive prayers and love from my heart to you and yours and precious Vivi

By Momma Chaos on 05.13.11 8:32 pm | Permalink

I spent the first year of my now 5yr old’s life going back and forth to the children’s hospital (2-3hrs away) trying to figure out what was going on with him. But as hard as that was, I had the first month as “normal” before the scary began.. I’m sorry you’re going thru this!! She is precious and hopefully the drs figure out what’s going on with her. ((Hugs))

By Kari on 05.13.11 9:51 pm | Permalink

Hugs and prayers to you all…I hope it turns out to be nothing, or easily fixable. Doctors are wrong all the time. ;)

If it does have anything to do with the jaundice, please please please make sure they check her for Biliary Atresia — the earlier BA is diagnosed the better chance it can be cured.

By Angie @ Just Like The Number on 05.13.11 10:00 pm | Permalink

Adding to a long and wonderful list of people praying for you and Vivi. If cookies and peonies would help in the least? I’m ON it.

By Cinthia on 05.14.11 2:46 am | Permalink

I hope everything turns out ok… prayers and blessings!

By sara on 05.14.11 6:40 am | Permalink

sending up so many prayers for you & your family. hang in there gal!!

By Pgoodness on 05.14.11 10:40 am | Permalink

Lots of love and strength your way. She’s gorgeous, you’re awesome and you’re all so loved.

By Jen L. on 05.14.11 11:31 am | Permalink

Love and prayers for Vivi and all of you.

By Katie on 05.14.11 1:27 pm | Permalink

prayers. and lots of them.

but I am sure you already know that.

she looks absolutely perfect to me, if that means anything.

By mary on 05.14.11 2:22 pm | Permalink

She is beautiful. I’ve been at Riley Hospital myself and know others who see docs there, if you need a good specialist, there likely is one there. Prayers for all.

By Ordinary Sarah on 05.14.11 3:01 pm | Permalink

OH Casey, she is just beautiful!

I hope everyting gets figured out for sweet Vivi soon. SO sorry you feel a little helpless right now. Thinking of you all the time!

By amanda on 05.15.11 5:30 pm | Permalink

Just saw this post now – I am hoping everything is OK – she is so, so beautiful. xoxo

By Jamie on 05.15.11 8:41 pm | Permalink

I hoping from your next post, that things are better, but in looking at her, Casey, she’s just perfect. And I know you and Cody and Addie have it in you to love her through anything anyhow. <3

By SciFi Dad on 05.16.11 7:26 am | Permalink

I’d offer to pray, but you and I both know that’s futile at this stage. I’ll have a good thought for you and your littlest girl.

Please keep us informed.

By Melody on 05.16.11 10:22 am | Permalink

I’m a Riley mama. My daughter is a heart baby– multiple holes, open heart surgery at 4 months. 3 other surgeries within the first two years for other birth defects. She’s beautiful and perfect and good as new now, but I know what its like spending the first months of your little one’s life in a children’s hospital– sanity wrecking. And its very heart to BF through it. I only lasted 9 weeks.

If its heart-related, I’ve been there and am happy to share what I know and where we’ve been. Your baby is seriously gorgeous. And usually newborns are not, even though people will say they are. Vivi is really something special, mama. Sending light to you and your family.

By suzanne @ pretty*swell on 05.16.11 3:10 pm | Permalink

Prayers for you all, especially sweet Vivi.

By Kerri. on 05.23.11 10:20 pm | Permalink

Thinking of you and your daughter.

By IndyY'all on 05.24.11 8:35 am | Permalink

So sorry to hear of all the speed bumps. I work at Riley if there’s anything I can do to help.

By moosh in indy. » viviculties…resolved, somewhat. on 05.24.11 10:46 pm | Permalink

[...] week and a half ago I wrote about something being wrong with Vivi and so many of you came out to support us through the scary unknown that is a sick baby. I just [...]

By Kimberly on 05.31.11 12:19 am | Permalink

She is so precious. Sending you much love and hugs and good wishes that everything will be ok.

By Caiu na net on 06.06.11 8:32 pm | Permalink

Isto é, muito possivelmente, a mais bela mensagem que você já escreveu. Eu amei cada palavra. Tendo acabado de retornar de minhas férias na Italia primeiro bonita, eu posso apreciar mais do que nunca a beleza de uma vida simples vivida na quietude de inspiração. in brasil

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